musings on my magical MyStery tour...

In which I try to come to terms with reality. But reality bites.

My Freaky Year with MS, the highlights and lowlights of learning to dance with the disease

This blog is a re-post from ReConnected Life, and a mea culpa blaming MS…

This relapse isn’t going to remit. This is my new normal. It takes some getting used to…

Back in the day, I learned the importance of pacing the hard way. Now, the tools I learned in my recovery are critical to my everyday.

MS vs. the volcano. The volcano won. And so did I.

It feels like everyday, to do anything, I’m wading through treacle. Motivation is at the end of the rainbow. And all I can see is fog.

Sometimes the normal response to not-normal events is to struggle with your mental health.

Living with constant pain takes its toll on the soul. At least, I suppose, you’re forever surprised by the types of pain, and where it’ll decide to show up.

This morning has been full of small triggers resulting in angry outbursts. This one won’t cover everything about anger, or even everything about just the anger I’m feeling right now. Writing to vent. And in writing to get it gone.

This diagnosis comes with a label. I’m officially disabled. And yet, whilst I’m nowhere near what I would normally define as disabled, some days I really feel it. I’m not a fan of labels. And I’m definitely not a fan of this one.

They say it’s OK that it’s been three months since the diagnosis and I’m still not OK with this.